Speaking for the majority

Screen Shot 2014-07-17 at 21.22.38This weekend, the influential (and, surprisingly, moderately rightwing) newspaper, The Economist, takes a strong stance in favour of assisted suicide, proclaiming,

Most people in the Western world favour assisted suicide. The law should reflect their will.”

It describes the horror suffered by Tony Nicklinson, paralysed by a stroke. (After being denied the right to die by Britain’s high court in 2012, he refused food and finally succumbed to pneumonia.) It discusses the objections one by one, and answers them. In the case of strongly held religious objections, for instance, it rests with common sense and says that, “In a pluralistic society, the views of one religion should not be imposed on everybody.”

The Economist praises the Swiss model (free for the Swiss, but prohibitively expensive for most foreigners who want to travel there). It concludes that although the current bill in the House of Lords would make assisted suicide legal in Britain for the first time, it does not go far enough, but that gradualism is appropriate to allow increased public support for further liberalisation. “We hope that it passes,” says this most level-headed of newspapers. “On such an emotive and contentious issue politicians should reflect society, not lead it.”

Jo Beecham, a woman diagnosed with advanced ovarian cancer in 2011, “keeps a stock of poison in her fridge,” says The Economist.” What they don’t mention is the difficulty of obtaining and ingesting a reliably lethal and painless poison. Suicide sounds easy: with more than thirty years of research that this organization has seen, we have to point out that often it is not.

Readers of the ExitEuthanasia Blog may be interested in our work researching the strengths and pitfalls of methods of rationally ending one’s own life. Here is a taster of our print journal. It features both academic and light reading but, most essentially, tips and research to supplement our books on self-deliverance.

(from the contents of the 2014 Summer Issue) –

STAR IN YOUR OWN EXIT We talk about our famous full-day empowerment workshops where people learn the techniques in a relaxed and convivial atmosphere.
SIGNATURE SUICIDE FOR A RATIONAL PERSON The first of this issue’s articles that looks at double suicides, plus the aesthetics and personal touches for helium, compression and other methods of dignified death. Following reader requests, we also consider research on a more controversial means – that of firearms.
DEATH: CAN IT BE A WINNING GOAL OF LIFE? What did the World Cup have to do with facing death? Inspiration from Neymar’s remarkable ability to score winning goals under pressure!
LONDON THEATRES ASK IF THERE’S A RIGHT TO DIE Theatre finds a way to stimulate, not preach.
NU-TECH – EXIT REPRESENTED ON THE INTERNATIONAL STAGE A brief mention on the coming conference at the World Federation of Right to Die Societies.
BOB’s STORY – an end to life in the Central Valley sunset.
HUMOUR – keeping the blues away.
SHARING LIFE EXPERIENCES (editorial on dehydration, thoughts of death)
WHAT WOULD YOU DO? LET THE INDIVIDUAL DECIDE – A joint self-deliverance with helium raises interesting questions.
AGM REPORT & reactions to the thought-provoking and controversial short film “Relics.”
HOW TO DO AND HOW NOT TO DO IT –A VISUAL GUIDE
TIPS AND TRICKS: for helium, drugs, and compression.
QUOTE/UNQUOTE – sayings to think about
IT TAKES ALL SORTS – The very unusual funeral of Mr Hunter S Thompsom
EXIT’S SELF-DELIVERANCE WORK REMEMBERED 1985 – 2014.

This week also sees one of the last taboos against assisted death tackled in one of the world’s leading multidisciplinary academic journals. In the Cambridge Quarterly of Healthcare Ethics, a Special Section addresses “Pathologizing Suffering and the Pursuit of a Peaceful Death.” Medical Law expert, Ben A. Rich points out that psychiatry has made strong inroads into hospice and palliative care, but has also brought with it a conviction that dying patients who seek to end their suffering by asserting control over the time and manner of their inevitable death should be provided with psychotherapeutic measures rather than having their express wishes respected. He critiques that approach from the perspective of recent clinical data indicating that patients who obtain and use a lethal prescription are generally exercising an autonomous choice, unencumbered by clinical depression or other forms of mental illness.

The excuses are running out. When Nicklinson heard that his appeal had been refused by the courts, we saw this grown man break down in tears, even though he could barely move. Such things should not happen.

 

Links:
http://www.economist.com

http://journals.cambridge.org

http://relicsfilm.com/tagged/look

Join Exit: http://www.euthanasia.cc/new_app.html

 

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Praise for The Exit Path

The Exit Path (cover)Richard Cone writes:
“Five Last Acts – The Exit Path” is easily the best book I have read on the subject of self-deliverance (suicide to end unrelievable suffering). Chris Docker, the author, is clearly a scholar on the subject. The text is richly annotated with background material and references to original articles, a feature usually absent from writing on this topic. The content is authoritative. As a person familiar with the physiology of death, I found the explanations lucid, completely accurate and informative.

One of the most compelling aspects of the book is Mr. Docker’s clearly stated descriptions of the advantages and disadvantages of each method. Importantly, his extensive discussion of fasting (refusing food and water) debunks misleading statements made by some others who advocate this method above all others. Docker’s handling of this issue is balanced, precise and refreshingly unbiased.

The main theme of the book is detailed explanations of each method, including step-by-step instructions with illustrations. Anyone considering self-deliverance would benefit by carefully reading these instructions. In addition to recipes for success, the text compassionately warns of pitfalls for each method that could lead to disability instead of death, an important consideration that is too often ignored. The book benefits from limiting the content to methods for ending life. The Introduction clearly states that related issues, such as legal restrictions, wills, and management of family and care-givers, while critically important to those considering self-deliverance, are not explained here. This allows the author to do a more complete job of the topic at hand, which is practical methods.

Five Last Acts is both a major contribution to the field as well as an indispensable resource for people facing intolerable suffering. Docker shows compassion and exceptional courage by producing this controversial work. In doing so, he is preventing untold suffering. –

Phil Cheatle (Bristol UK) writes:
“This book is so outstanding at what it does that I will not lend it to anyone else. That is the highest accolade for a book of this type. If you are seeking the knowledge it offers, you will not be disappointed, The book goes as far as it can to alleviate my end of life fears. The book is well researched and very thorough in its coverage. It is not without faults – sometimes repetitive and poorly laid out. However, these faults are acknowledged, and the reasons explained by the author. He has made the right decision to publish in its current form in my opinion.

It is a very sad reflection on society that this book is necessary. Why do we allow more compassionate end of life treatment for our pets than our human loved ones?
I do not want to have to use the knowledge in this book. But unless I can be assured that my end of life wishes will be carried out by others, when the time comes, without them breaking the law, I will use a technique from this book… unless I suffer a sudden illness or accident which leaves me unable to do so. That is my remaining fear that no book can help with. Thank you, for your careful research and for having the courage to publish it.

Barbara Pearce writes:
“The information in this outstanding book was urgently needed in today’s world and is hugely appreciated by an increasing number of people who want to understand suicide. If we want and need to know the choices open to us at the end of life, then how can it be possible that the knowledge is condemned and obscured by government and the medical fraternity? The book (FLA The Exit Path) allows people to prepare and understand their choices at end of life. The book is practical, detailed and realistic. Perhaps I will never need the knowledge but I am relieved and thankful to have it all the same.

“For anyone interested (should the need arise) in taking control over one’s own destiny in the face of an incurable condition, this book covers it all. I have read many publications on the subject but never one with this much information. It’s literally as thick as 4 standard books. This book brought me a lot of comfort, knowing I have the knowledge and support by my side for the unpredictability of the future. Thanks to the author for his courage and hard work on writing this one. (From ‘Jon’)

This book goes beyond other books on the topic and reflects the author’s many years and expertise in the right to die. Authoritative and well-written. I highly recommend it. – Cheryl

Excellent book! Not only covers the much needed understanding of the physiological aspects of the human body but touches on psychology as well. I thought it a very well written book, which did a nice job balancing all aspects of end of life issues. – Kate

(All reviews have appeared on Amazon)

Thank you to all the people who have posted reveiws. It is very hard work researching this subject responsibly and the feedback is very encouraging. Chris Docker, author.

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Does it really have to come to this??

 John and Robert McIlwain will be missed by those who knew them. Frail but friendly members of the local community, they tended their shared garden and even helped with that of their neighbour in the leafy cul-de-sac – at least while their health permitted.  They were described as “good neighbours and good people”; and the floral tribute left outside their home read: “RIP Bob and Jack. Two lovely gentlemen. Its been a privilege to know you and call you friends. You will be missed by us all.” Residents in the beautiful street in the Gracemount area of Edinburgh said how the brothers, who were very private persons, would have been “shocked” by the arrival of armed officers and a police helicopter.

What was their story, of a simple life well lead, and a sudden, violent end that they saw as their only option?

The two brothers were aged 71 and 73 at the time that they died. Bob had worked with asbestos in his younger days and that had resulted in lung problems. He understood that treatments were very limited and also what the disease had and would do to him. Suddenly becoming more frail over recent months, he had taken to using his brother’s mobility scooter and was using oxygen for breathing problems related to his asbestos- related pulmonary fibrosis.

John had been disabled from birth by a hip problem, but could get around until his later years, when he became housebound, with his brother Bob looking after him. Both been keen golfers at one time, but their health had deteriorated over the years, becoming much worse about 18 months ago. Like Bob, John suffered from asbestosis, for which there is no cure.

A few weeks before their deaths, they had asked around at their neighbours, having no surviving family, to find someone to witness signing their wills. Said one of the neighbours, “Bob loved to look after his garden, and even helped with other people’s, including mine, but he wasn’t able to do that any longer because of his health. It was hard for him to give it up. He had to hire a gardener to do it for him. I last saw him on Tuesday and he just waved at me as he stood at his door.”

Both Bob and John were licensed firearm holders. A police source said: “We received a call from a man who claimed he was going to kill himself. When police arrived, two bodies were found in the house.”  The two brothers were found slumped on top of a firearm, with gunshot wounds to the stomach, at around 6pm last Thursday (29th May 2014). Rush-hour traffic in the area was gridlocked for more than two hours as police closed off a one-mile stretch of nearby Lasswade Road, a main commuter route. A police helicopter was also called in to observe the scene from the air. Police denied any suggestion that one brother had shot the other, insisting that it was a double suicide and with no suspicious circumstances.

“I think it was a brave thing for them to do,” said another neighbour. “Bob knew he wasn’t going to get better and he saw what was ahead of him. It’s very sad and they will be missed.”

Anne Parker, 83, who lived next door to the brothers, said, “There was no evil in them, they were as good as gold. They were very thoughtful,” and added, “I can only imagine that they had planned it and that it was done out of love.”

John and Bob McIlwain lived at Lockerby Cottages is a quiet residential street off Lasswade Road owned by the Lockerby Trust, set up in 1894 for “distressed gentlefolk who had fallen on hard times.”

What do you think? Was their death justified? Should there be gentler options for folk who feel they want to end their lives in unbearable circumstances? Is the police furore a fitting end to what should have been a private affair, or even a good use of public resources?

 

Further reading
Asbestosis (medical outline)
Asbestos Awareness (British Lung Foundation)
Pulmonary Fibrosis (NHS guide)
‘Gunmen’ headline (Daily Record)
What to do after a death in Scotland (Scottish Executive bereavement advice)
Send your views to the Holyrood Committee on the current Assisted Suicide Bill (intro)
Assisted Suicide (Scotland) Bill (Scottish Parliament)
Exit’s general legislative recommendations and principles

Warning: The result of a failed suicide attempt, frequently through inadequate knowledge of guns, can be horrific.
See for instance: this Neurosurgery page or this Wikipedia page, or this presentation on difficulties of non-fatal aftermaths.
Firearms suicide and attempted suicide is less common in the UK than in the USA.

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“They” said it would be easy! Choose your experts carefully…

image663389557"I stopped taking any nutrition a week ago. It was
the only choice I saw to end my life, the only
thing I can control. The literature I read said
it wouldn't be hard, and it isn't -- it's brutal.
My loved ones support me, but this is as difficult
on them to watch as it is for me to execute.

The experts told Charles Selsberg that refusal of food and liquid as a means of ending his life would not be painful. They were wrong. “But I know someone who did it and they died very peacefully,” you say. Indeed. But it is a method with many factors and what works for one person will not necessary work for someone else. Be very careful which experts you listen to and which literature you trust.

Starvation/dehydration is such a complex subject that The Exit Path spends no less than 50 pages examining and analysing the evidence and presenting guidelines based on collating data from more than 100 published sources from academic studies and the mainstream press. Yet each month we hear of some well-meaning source suggesting that it is ‘painless’ or that it is the ‘ideal’ way to go; and the same month we hear of another prolonged and painful death where someone took that advice at face value. In this short article, it is only possible to give the briefest of outlines, but we say, don’t take our word for it, look at the evidence.

How is what we tell different to the advice from other sources, some of them eminent doctors or even some right-to-die groups? The answer is metadata. We don’t just look at a few examples and add on some convenient theory. We search and search again, paying particular attention to failures and their causes. We look at the medical hypotheses and see if they stand up to the most difficult examples. We are probably one of the very few organisations that can devote full-time investigation to get to the bottom of controversial self-deliverance issues. We ask other experts to criticise our findings just as we criticise our own. When it comes to someone’s life and death, we think they deserve more than a belief, a ‘wish-and-a-prayer.’

So what are the basics on starvation-dehydration as a means of self-deliverance?

1. Firstly, you need to be in the category of persons for whom it is possible (but not inevitable) that it will work well in ensuring a peaceful and painless death.

2. If that is satisfied, you need to prepare. Once you have embarked on your terminal fast, it is too late to put the necessary things in place.

3. You need to be familiar with the probable course of your terminal fast, what to expect, the potential obstacles that may require urgent attention.

4. Your friends and family need to be aware also, how your appearance will change and your physical capacities become less. You will need to know how you can exert some control over your progress to interact with them.

5. You need the willing back-up of a medical person able to prescribe such (legal) drugs as may become necessary to relieve symptoms that arise, as well as some basic day-to day nursing care.

6. The process is voluntary. In theory, you can stop at any time; but there is also a point of no return. Calling it, “voluntary refusal of food and liquids” is a fuller way of describing it to cover the moral issues. There must be no question of relatives or carers refusing liquids or nourishment. “Starvation-dehydration” simply identifies the physical process causing death.

Let’s not beat about the bush: there are many people who die peacefully by this method and many that don’t. Tony Nicklinson (see previous blog) was severely debilitated. He was also in touch with many sympathetic doctors. Charles Selsberg was less fortunate.

Many terminally-ill cancer patients experience a bodily “shut down” and no longer feel a desire for food or drink. Many of them also have excellent hospice care to manage any conditions that arise. Many of the studies on death by starvation-dehydration have been in similarly well-managed clinical settings. Yet Jane Gross’s mother, paralysed and desperate to die, had medical back-up in her nursing home and still suffered. “The first three days were so-so,” says her daughter, adding that, on a scale of 0 to 9 where 9 is “a very good death” her mother’s condition would have been a 6. “The last three days were peaceful, an undisputed 9. It was the week in the middle that was harrowing, at best a 3.”

Finally they got an outside pain consultant to persuade the staff physicians that they could raise the dosage without risking legal liability. “Only then did my mother stop pumping one arm frantically, clenching her jaw and staring wide-eyed at the ceiling.”

Excited by the findings of a Dutch psychiatrist, one right-to-die group led by a doctor had even started recommending refusal-of-food-and-liquid as the best way to go, failing a change in the law. Horrific newspaper reports of bad deaths followed, and the group quickly played down their advice.

Factors that can eliminate (or severely increase the difficulty) of patients from point (1) include being overweight or having a pre-existing condition that increases the likelihood of organ failure. Nursing needs can include care of the mouth so that it doesn’t dry out completely (and painfully), bed turning to prevent sores, and general observation to anticipate medical needs. Medical needs commonly occurring are the need for ordinary prescription drugs to control things like sleeplessness, anxiety, occasional breathlessness and pain. Emotional needs should be thoroughly addressed by full and open advance discussions. Advance equipment might include a nebulizer or hand-held atomizer, saliva-replacement gel, eye-gel (or ‘artificial tears’) and nasal sprays, plus Vaseline or lip-balm. A soft-toothbrush for oral care, and a gauze soaked in alcohol-free chlorhexidine can be used on the gums and tongue to prevent fungal infections in the mouth.

No-one undertakes raional self-deliverance unless their suffering is unbearable. If they make that final choice, everything should be done to ensure that they do not unwittingly bring even more suffering on themselves.

Exit received an award from the Natural Death Centre in 1996 for its ground-breaking study of death from refusing food and liquids. It has continued to research and publish in this area for almost 20 years.
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No helium, no bags, no information, can’t talk about it, where will it end?

nicklinson  S.CHow much respect does the law really give you for your private life? Your family life? Your private arrangements between you and those you love and who love you? This apparently straightforward question is one that our highest court wants to decide for us. They are still ‘deliberating.’ Perhaps they think we are “just not capable” of deciding how to live and die. Is that really the case?

Slavery(1) was abolished in 1833. You now have the right to live your life as you please, without interference from others, and without interfering with their lives — at least that’s how the theory goes. One day you will die but, while alive, you must have the right to die how, and when, you will, or your status as a human being wil be reduced. The courts, so far, don’t agree. It remains more a case of, if you can get away with it, fine! The Court of Appeal holds that there is no right to commit suicide, since the Suicide Act(2):

“. . . can more accurately be described as conferring an
immunity from the criminal process for those who actually
commit suicide. A fortiori, if there is no right to kill
yourself, there can be no right, fundamental or otherwise,
to require the State to allow others to assist you to die
or to kill you”(3)

Having decided what the law can ridiculously get away with, religious, political, and well-meaning motherliness push lessening your rights further. I can buy a car, a perfectly lethal mechanism to end my life or that of another, and no-one suggests cars should be banned. Yet there are people seriously wanting to ban sales of helium. If we compare helium to cars, there is little doubt in my mind which is the most dangerous and which is the most dignified. In America, ordinary plastic bags and tubing (“Gladd bags”) were banned.(4) Cars and guns aparently are ok, but plastic bags are not (the tubing happened to be the right size for conecting a tank of helium, but these bags and tubing are available from many a highstreet store).

Last year, pressure was put on Exit resulting in the loss of our credit card trading facilities. The main inconvenience is to overseas members, for whom paying their magazine subscription becomes more cumbersome. The silliness was probably aimed at restricting information — information that can be gleaned from newspapers and medical books, hundreds of underground internet sites (not this one) or more responsibly and reliably from Exit publications (which anyone can buy from Amazon). What happens when you make it hard for people to get sensible information is that they resort to bootleg sources. Books or websites with inaccurate instructions, or horrible and undignified methods of suicide. Chemical suicides (a Russian roulette that endangers other people), potpourris of pills or other backstreet methods.

Tony Nicklinson(5) was refused help by the Courts and starved himself to death. Luckily, he died well. Starvation is a particularly risky method for many people and there are many cases of a horrble ddeath when they are unprepared.(6) Indeed, no less an authority than Lord Browne-Wilkinson stated:

"How can it be lawful to allow a patient to die slowly, though
painlessly, over a period of weeks from lack of food but unlawful
to produce his immediate death by a lethal injection, thereby
saving his family from yet another ordeal to add to the
tragedy that has already struck them?"(7) 

A patient that cannot move has less options when it comes to choosing the time and manner of his or her own death. Why do we do it? The likely answer was succinctly put in a recent Law digest:

"Rather than face head on the most difficult fact of life, that it
must end, we force people with severe physical disabilities to
continue their lives despite their express and maintained desires
to the contrary, even though we do not do so to able-bodied people.
In a society striving for equal opportunities in all other areas,
this anomaly cannot be ignored."(8)

The Supreme Court (U.K.) is currently grappling with this question of assisted suicide, since severely paralysed people are disadvantaged and unable to make a simple choice on how and when to die in the same way that able-bodied people can choose. The issue is whether the prohibition on assisted suicide is incompatible with the right to respect for private and family life. If the answer is yes, to comply with such rights, the Suicide Act 1961 should include a defence of necessity, so as to make it not unlawful for a doctor to assist in a person’s suicide when that person has made a voluntary, clear, settled and informed wish to end his or her life (but is unable to do so without medical assistance). Alternatively, if no such defence is available, the Court should declare that, in such circumstances, the Suicide Act 1961 is be incompatible with the rights to private and family life.(9)

Some people hope that our so-called “right-to-die” will seventually just go away. If only it would die, and its ashes swept under a table! But it doesn’t go away. While life goes on, the prospect of our eath, and of dying well or dying badly, continues to be a live issue.(10)
(1) The Slavery Abolition Act 1833 (citation 3 & 4 Will. IV c. 73)
(2) The Suicide Act [1961]
(3) R (Nicklinson) v A Primary Care Trust [2013] EWCA Civ 961 (para 55)(4) “A less than Gladd end” (ExitEuthanasiaBlog)
(5) Mail Online  The Independent (newspaper reports on Tony Nicklinson)
(6) Overview of rational suicide methods, including starvation
(7) Airedale Hospital Trustees v Bland [1992] UKHL 5
(8) Elaine Freer, Halsbury’s Law Exchange
(9) Current Supreme Court Cases, R (on the application of Nicklinson and another) (AP) (Appellants) v Ministry of Justice (Respondent)
(10) See also, Rosalind English, “Is there a right to die in English law?”

Regular readers interested in legal nuts & bolts: please find links to cases & statutes in the right-hand column.

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What would you do? Let the individual decide.

HeliumAtomIn the first week of the new year came the news of an elderly ill couple that had ended their lives together. As people read these words, their responses may be of many different kinds.

There are those who are, quite simply, grieving. We miss a person’s passing. We mprobably hope that they did not suffer. Other emotions are common with any bereavement, such as sadness, shock, anger, wanting to blame someone or wondering if something else could have been done. Some people immediately feel that suicide in any shape or form is wrong. Others want to know more details. How old were they? Were their illnesses terminal? Or, could I do it in their situation?

My own first reactions are usually, “I hope the person did not suffer. I hope they had a good death.” Is death ever good, you ask? Some deaths are clearly better than others – as you will know if you have ever watched someone suffer terribly before the moment of death. It is true that, with advances in technology, most pain (but not all) can (at least theoretically) be treated. Yet it is also true that a large proportion of pain is not successfully treated in practice. In addition, there are often other factors making life sometimes less than bearable. Catheters, drips, side effects of chemotherapy, or being so doped out by morphine that any meaningful interaction with the world and one’s loved ones is very significantly reduced. It can get to the point where the patient’s possibility of any good experience is virtually nil.

This does not discount the value of last-minute exchanges with loved ones, and the crisis of impending death can reveal new bonds. There is also a practicality when death does not come too quickly. My old doctor, right up to his last year of life, had always expressed the hope that he would die of cancer. When asked why, he said that palliative care is more advanced for cancer than many diseases but most importantly it gives you time to put your affairs in order.

Mr and Mrs Phillips clearly had time to plan. They even posted a letter of intent to their lawyers so their bodies would be found at the appropriate time afterwards. They were discovered sitting calmly on their sofa. They had died within seconds of making the final decision. The means (reported in the newspapers) was helium. Safe, effective, painless, odourless.

The bedrock consideration must be the amount of suffering the person is experiencing in the last phase of life and whether they are the sort of personality that decides, Sooner rather than later: With dignity, rather than dragged screaming. It is up to that person to decide what amount of suffering is ‘unbearable.’

In the case of newborn babies, clear guidelines exist to allow a baby to die, for instance, when a baby had been born very prematurely, suffering brain damage, epileptic, and the evidence is that the child would be blind, deaf, dumb and quadriplegic but fully capable of experiencing pain, then the law allows that child to die. (This was the case of Baby J). Similarly, a person with an advance medical directive (living will) can legally refuse treatment and choose to die from an underlying condition. But these examples refer to people kept alive with life support or medical treatment and who will die swiftly without it. The law makes no provision for those who will simply die a slow, often agonizing death.

Except for the lucky few living in a country where you can ask a doctor to assist legally, or who can afford the large sums necessary to go to Dignitas for an assisted death in Switzerland, the only other option is doing it yourself. The methods of peaceful death using helium (the method chosen by Mr and Mrs Phillips) are now so well-known that there is little or no question of being able to stop someone who has made up their mind. Yet the emails to Exit show some marked differences. Members of organisations such as ours (Exit), or Final Exit Network (in America), or Exit International (in Australia, no connection with Exit), almost always choose inert gas as a safe and reliable means of self-deliverance (rational suicide), if and when things get too bad. Whereas persons feeling suicidal due to a psychiatric condition or psychological trauma tend to go for more dangerous methods. We wouldn’t like to see anyone choose death unnecessarily, for reason of something that could be put right. Yet if death cannot be avoided and the suffering is unbearable and unrelievable, any human being would wish that the last moments of another, whether natural or by their own hand, are as peaceful and dignified as possible.

When couples end their lives together, it can have a romantic sense to it . . . yet only if both are old, both suffering from a disease that is likely to be fatal. We should never glamorize to the extent that one half of a couple feels influenced by a ‘trend;’ but at the sort of ages that we are talking about, surely most people are old enough to make up their own minds.

At the far end of the end-of-life spectrum, some people have simply had enough, thank you very much, and wish to bow out gracefully. For some, disease or injury precipitates the decision or hastens the choice. Others want to let the doctors do their best and see what happens (bearing in mind that there may come a point, possibly in hospital or through incapacity, that you no longer have that choice). Nothing, no-one, should persuade someone else. Let each individual investigate the options and so be prepared. Understand the disease and its likely progression. When you get a diagnosis, wait a few days at least until the shock has worn off and you can think about it with a clear head. Above all, it is your life, your decision. We have a tendency not only to cling to our own lives but to cling to those of others, sometimes to the point of taking away a person’s choice. Yet the motto of life in relation to others should ultimately be: let the individual decide! With a proper assisted suicide law, there would be little, if any, call for self-deliverance. A person could consider their options, what they would want in different stages of a disease, how much and what sort of palliative care, and know that they would be listened to without prejudice. The transparency would not increase early death. It would allow doctors to share their expertise more openly, and without patients ‘keeping mum’ to avoid putting doctors in an impossible position. There are enough doctors that would be willing to help. The courts have on more than one occasion deemed it would be appropriate to pass a law. The only ones that still need to decide are heads of government. Will they continue to support personal agendas? Or will they allow the possibility that the individual could decide?

Further reading:
Husband’s cancer led to couple’s helium suicide pact
Prostate cancer symptoms
Prostate Cancer Support Helpline
Prostate Cancer UK (management of advanced symptoms)
Medical review of prostate cancer palliation
Prevalence of pain in cancer patients
Management of death in severely premature neonates (book)
The Exit template for a new Assisted Suicide Act

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Liberté for France??

lutetiaRomantic suicide fever has gripped the French media in the past week after an 86-year-old couple, described as brilliant intellectuals, ended their lives together last Friday. Three days later, a second Parisian couple, aged 84 and 81, were found dead in their apartment in the city’s upmarket 7th district.

France is a country of contradictions when it comes to the question of assisted suicide and euthanasia, with a massive 92% of the population supporting legal change for it. Yet this is the country that has also tried to ban books on rational suicide, including its own historic volume, Le droit à la mort : Suicide, mode d’emploi (“The right to death: Suicide, user manual”). Propaganda or advertising for products, objects or methods advocated as a means of committing suicide, though rarely enforced, is punishable by three years’ imprisonment and a 45,000 euro fine.

Yet although anything resembling euthanasia is horriblement illégal, the current French socialist president, François Hollande, made changing the law one of his 2012 election campaign pledges.

The story surrounding the 86-year-old couple adds enormous fuel to fire. They died holding hands at Lutetia, one of Paris’ most romantic hotels on the Left Bank, and once a favourite haunt of Pablo Picasso, Samuel Beckett and James Joyce, who loved its romantic setting and architecture.

Friends and family of Bernard and Georgette Cazes, said there was no doubt the pair were still very much in love after more than 60 years of marriage; and in the name of that loving unity, they decided to end their lives together at a time and place of their choosing. A member of staff walked in with the breakfast tray to find the pair hand in hand on their bed with plastic bags over their faces. A letter was also found, in which Georgette vented her fury at not being able to enjoy a more dignified, comfortable departure.

“The law forbids access to any lethal pills that would enable a soft death,” the typed note said. “Should my freedom be only limited by that of others?

They had been active until recently; Mr Cazes was an eminent economist-philosopher and author of a series of books including The History of Futures, which charted how the future was predicted throughout the ages. His wife was an author and Classics teacher, and later a volunteer social worker.

Georgette and Bernard, from the Paris suburb of Issy-les-Moulineaux, had asked staff to bring them breakfast in bed, ensuring their bodies would be found quickly. All their affairs were in order, including documents containing their final wishes. When found, the couple’s room was perfectly made up, just as they had found it when checking in. Mrs Casez had first visited the hotel in the 1940s when she met her father there when he was released from a prison camp after the Second World War.

It would appear they died peacefully. The second couple also managed a gentle death, but using prescription drugs. Most rational suicides in France are not so lucky. With the restrictions on literature, most persons seeking an end to intolerable and violent means, which also traumatises relatives who find the body.

A history

Since the Middle Ages, Western society has used first canon law and later criminal law to combat suicide. Changes in the legal status of suicide, however, have had little influence on the suicide rate. Beginning after the French Revolution of 1789, criminal penalties for attempting suicide were abolished in European countries; England was the last to follow suit, in 1961. But many of those countries and numerous U.S. states also adopted laws against helping someone to commit suicide.

A French physician, called Dr.E.Forgue. published an article, named “Easy death of incurable patients” in La Revue de Paris, in 1925, and pointed out that killing an incurable patient wasn’t a legal condition. But, Liege Bar said that killing an incurable patient with his free consent had to be forgiven.

The 2005 Leonetti End-of-Life Act, was a significant turning point. This Act was voted into law as a response in part to public outcry over cases like that of Vincent Humbert, a young man suffering post-traumatic locked-in syndrome. He voiced his desire to “die legally” but his appeal was denied, and his mother assisted in killing him by injecting him with an overdose of barbiturates that put him into a coma, killing him 2 days later. Although she was arrested for aiding in her son’s death and later acquitted, the case jumpstart the new legislation which states that when medicine serves “no other purpose than the artificial support of life” it can be “suspended or not undertaken”.

It covered the sort of ground of refusal of treatment and and advance directives now common in many other countries. Although a legal landmark, many people involved in end of life situations claim that the approach used in hospitals has not really changed since the introduction of the law. Many people want to see the law extended to cover physician assisted suicide and also ensure measures to upgrade the country’s palliative care procedures.

Last year, award winning director Michael Haneke’s film Amour tackled elderly assisted suicide and picked up a swathe of prestigious awards at the Cannes Film Festival. This year, President Francois Hollande said that France should hold a national debate on the issue and stated his intention to introduce a bill to parliament before the end of the year. Opinion polls in France show that the majority of the public are in favour of an assisted suicide law, but so far France’s national ethics committee has advised against any change in the law.

————————————————
Oh,
I
know
I too shall cease and be as when I was not yet, only all over instead of in store. That makes me happy, often now my murmur falters and dies and I weep for happiness as I go along and for love of this old earth
that has carried me so long and whose uncomplainingness will soon be mine. Just under the surface I shall be, all together at first, then separate, and drift through all the earth and perhaps in the end through a cliff into the sea, something of me.
A ton of worms in an acre, that is a wonderful thought,
a ton of worms, I believe it.
                                                            — Samuel Beckett


French law on assisted suicide
(in French: use Google translate for an English version)
Ethics review: End of life legislation – the French model (medical journal article)
Euthanasia, assisted suicide and palliative care (review by the Ethics Committee of the French Society of Anaesthesia and Intensive Care
Acceptability for French people of physician-assisted suicide (abstract of article)
French hospital nurses’ opinion about euthanasia and physician-assisted suicide (phone survey)
A report in The Telegraph newspaper

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Download the new trifold leaflet

FLA-TEP flyer photoNew: download and print the new tri-fold leaflet with information about Five Last Acts – The Exit Path.

(CLICK HERE)

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Facing the moment of death

DSC03962Whether a person is interested in the reassurances that Exit’s literature can offer or not, each of us has to face the moment of death one day. “When it all comes to an end” examines what we can do to face the last moments of life with equanimity, whatever our situation. We offer it to our supportive readers for personal use (It may not be published elsewhere or modified without permission. We ask you to please respect this. Webmasters may feel free to offer a link direct to this site.)

The article does not include details of self-deliverance (rational suicide) techniques. Much of the information is equally applicable to a self-deliverance, a hospice, or a natural death at home. The psychological methods have also been featured in peer-reviewed journals.

Click here: When it all comes to an end
(This article has also been published in Exit Newsletter and Five Last Acts – The Exit Path. The version here is from the Special Feature in the Exit Newsletter.)

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Is Falconer’s bill a folly?

lord falconerThe ‘Right-to-Die‘ campaign, while supported by the vast majority of the public, is heavily outgunned and outfunded by vested interests in the Government and Church. So most supporters feel we should be grateful for anything we can get, right?

This sad state of affairs is reflected in much of the effort to achieve legislation. Lord Falconer’s Assisted Dying Bill – at least in any of the available drafts and probable final version – is a beautifully polished example. Legally precise and crafted with all the razzmatazz one might expect from the Secretary of State for Justice, the bill looks like a ‘least worst attempt.’ The examples of Oregon and the Netherlands have clearly been considered and the questions asked, Which is the ‘safest’? Which is the least likely to be rejected by parliament?

Although the bill has a number of clauses that make use of sophisticated niceties of English law (such as provision for additional future regulations), Exit feels this attempt, like so many bills before, is the wrong way to go about things.

To demonstrate this, let us look at some more effective, more ethical, and more acceptable approaches.

Claudia Carr, from the University of Hertfordshire‘s School of Law, has proposed a tribunal system which is closer to Exit’s model by way of being able to examine individual cases. This would involve independent persons from both the medical and legal professions. Such a review body provides a more open, accountable and transparent system than merely having two doctors agreeing (as provided by Falconer’s bill).

But unfortunately even Carr’s proposals are an attempt to address the debate rather than the real concerns of patients. She rightly concludes that her system could avoid the inconsistencies and apparent abuses associated with the UK law on abortion; but by limiting her answer to those who are terminally ill (as does Falconer) she avoids the most noticeable group of people who fight for the right to die at a time of their own choosing.

For example:

It is unlikely that any of these high-profile cases would have been “assisted” by either Falconer or Carr’s proposals. Both legislative frameworks are asking the wrong question. They want to “do something” but without going so far as to really help someone who is unrelievably, unbearably (and often desperately) ill and wanting to choose the time of his or her own death. They are cowardly attempts. They pass the buck to Dignitas, to Exit, or to backstreet arrangements. Furthermore, by making blanket qualifications on who shall have ‘assistance’ they fail to provide any real safeguard, either for doctors or patients.

In days gone by, the good sense of a doctor could prevail. A doctor would assess whether his or her patient was indeed suffering unbearably and whether nothing else could be done to relieve that suffering acceptably. Today, that model needs to be expanded to include proper safeguards. The default position is, quite rightly, that a doctor should be under no obligation to help: but that a doctor should be able to advocate for his or her patient to ensure lawful treatment, including aid-in-dying, provided that patient is a competent adult reasonably and persistently requesting aid-in-dying. ‘Being terminally ill’ is clearly, from the above case examples, not the issue. Relieving suffering is.

Exit’s position has a number of other differences. We agree with Carr that a legal practitioner as well as a medical person should be involved in judging whether the person is competent; we agree that one of the medical persons assessing the person’s medical condition can be the person’s physician and that the other one should be independent; we propose a qualified assumption of competence for persons over 16 years of age; we provide for the possibility of a failed, authorised assisted suicide attempt and both cover and oblige the doctor to assist; and we address the possibility of residual legal matters and how to treat actions for negligence. We also incorporate the possible use of advance directives.

But we recognise that politicians, for a variety of reasons, will not always seek and follow the best academically sound advice (and here we humbly include Exit’s position, which is based on in-depth cross-disciplinary studies conducted by Glasgow University). The pressures to “do something” or “prevent something” may be very real. There is not always the option to support an ideal position.

Many proponents of the Falconer bill, as with Oregon, doubtless feel that it is a “step in the right direction.” Surely it could do some good for some people? This is a fairly persuasive argument. In the Netherlands, legislation has progressed in gradual stages. But in other countries, the temptation, having taken the first successful step, may be to regard the issue as having been “dealt with.” Only history will be the final judge. So in the meantime, our kindest wishes go to all those who are sincerely making efforts to address the concerns of people suffering unbearably and unrelievably. Whether their attempts at this stage seem to us in this article to fall short or not. Exit is only one voice among many.

references:

The Assisted Dying Bill by Lord Falconer (pdf)
Claudia Carr abstract at an Athens conference session on assisted dying
The death of philosopher Michèle Causse at Dignitas
(from Swiss TV)
Draft legislative framework supported by Exit

(Note: you can find links to laws in various countries by scrolling down the right-hand column)

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Volume 33(2)

Nov 2013ev 33(2) FRONT PAGE

For those readers who might be thinking about joining Exit, here is an idea of what the latest edition of our print magazine contains.

Exit (no connection to Exit International) was founded in 1980 to research and publish self-deliverance information. The knowledge of how to control the last moments of life, should the situation arise, have given hope and courage to thousands.

The print magazine contains a mix of serious articles on self-deliverance and other aspects of the ‘right-to-die’, plus a selection of lighter reading. Contributors include some of the world’s leading doctors, lawyers and philosophers, as well as experts and regular members writing about their ideas and experiences.

MIND AT WORK –  Ruth von Fuchs
explores new practical variations on self-deliverance methods
QUALITY OF LIFE CHOICES – Benjamin Brady
blends politics and philosophy in his case for a right to die
IN BRIEF –  editorial and fast guide to this issue
STATE OF THE ART
A new manual on self-deliverance is a magnum opus
SUICIDE AS PART OF FORWARD PLANNING – Marion Bolton,
an Exit member, has some innovative ideas
OFF THE BOOKSHELF – our latest roundup of books for your interest
END OF LIFE EMPOWERMENT WORKSHOPS 2013-2014
Full-day sessions to practice the techniques in a safe and exciting environment
WHEN IT ALL COMES TO AN END
A Special Feature on facing the moment of death
RULES OF ENGAGEMENT – the inspirational wisdom of Mahatma Gandhi
HOW AND WHEN IS IT GOOD TO DIE? – Carl Jung has the answer! (from ExitEuthanasia Blog)
LIVING YOUR LEGACY – remembering Exit lasts long after your life & death
A SECRET SLANG OF SPECIALISTS?
Why seeing your medical records might not tell you so much
EXIT AGM 2013 – the details, including an exclusive new film
THIS ‘N’ THAT
Odds and ends about self-deliverance
INTO THE WEST
A Member of Parliament gives his views on euthanasia
FLOATING AWAY
How heavy is disposable helium? how easy to use? . . . and other light questions
SO THE LAW JUST LETS YOU HELP SOMEONE TO GET TO DIGNITAS?
Think again!
QUOTE/UNQUOTE
Serious, amusing or thought provoking but always (we hope!) insightful
THE FLICKERING LIGHT – RELICS – an uplifting drama with helium
HUMOUR – your ‘near-death smiling experience’

*We are not connected with Exit International
Exit is the Scottish voluntary euthanasia society, founded in 1980. We have members world-wide.

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